News

Breaking down RFK Jr.'s alleged 'autism registry' tracking Americans with the condition
The National Institutes of Health director said they were launching an autism registry — but a Health and Human Services ...
Will there be an autism registry? What we know after NIH drops plans for vast data platform
An HHS official told USA TODAY that the department is not creating an autism registry, but is pursuing the real-world data ...
Health News Florida14h
RFK Jr. says autism database will use Medicare and Medicaid info
The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans ...
Health agencies "not creating an autism registry," official says, contradicting NIH director
"We are not creating an autism registry," a Department of Health and Human Services official said in a statement.
Privacy concerns swirl around HHS plan to build Medicare, Medicaid database on autism
The US Department of Health and Human Services on Wednesday unveiled a pilot program for the National Institutes of Health to ...
Medical Xpress10d
HHS clarifies: No new autism registry will be created
The U.S. Department of Health and Human Services (HHS) said it will not create a new autism registry, reversing an ...
The New Republic on MSN1dOpinion
Dem Governor Launches Plan to Counter RFK Jr.’s Autism Registry
Illinois Governor JB Pritzker has a plan to protect autism-related data from RFK Jr.’s absurd plans to create a disease ...
HHS plan to use Medicare and Medicaid data to study autism alarms experts
Federal health officials didn’t provide information about how people’s private medical data will be collected and managed.
Canceled appointments, pleas to shred records: Talks of autism registry put families on edge
Researchers, clinicians and disability rights advocates are dismayed by RFK Jr.'s new autism study. Many view it as a big ...
U.S. autism data project sparks uproar over ethics, privacy and intent
Administration health officials walked back a plan to register people with autism after criticism from scientists, privacy ...
‘Dangerous,’ ‘anti-science’, ‘dehumanizing’: CT families, officials and experts push back on RFK autism claims, registry
Autism advocates, scientists and senators called Kennedy’s assertions unscientific and alarming, with many in the autism ...