Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Epidermolysis bullosa is a rare and severe skin disease where patients have fragile skin that blisters and tears. A Mt.

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

Ashley Bergen says the healthcare system "helps in some ways" but there have been unexpected barriers to accessing care.

Carol Schober-Flores, BSN, RN, is a Mohs Surgical Nurse and Epidermolysis Bullosa Nurse Specialist, University Hospital, Denver, CO. Topical ointments can be applied directly over the Mepitel ...

Dermaliq Therapeutics and global non-profit organisation DEBRA Research have entered into a partnership aimed at advancing ...

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

Sophia is raising money for a national charity that supports people living with an incurable genetic skin condition, often ...