How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

Krystal's Vyjuvek innovative gene therapy leads DEB treatment, overshadowing Abeona's Zevaskyn. Check out the comparison ...

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

Musician Eddie Vedder attends the 'Matter Of Time' premiere during the 2025 Tribeca Festival, at Spring Studios, New York, NY, June 12, 2025. The documentary centers around Eddie Vedder's fundraising ...

Zineb Laalej tells PEOPLE exclusively how she cares for daughter Tayma, 9, who has recessive dystrophic Epidermolysis Bullosa It's the most severe form of the rare skin disorder, which is often ...

The Pearl Jam frontman played a solo acoustic set following the premiere of a documentary about how he and his wife have ...

MACE stores across Cork will play their part in a nationwide campaign to raise awareness of epidermolysis bullosa (EB).

BIO International Convention (BIO2025), the world’s largest annual biotech event, will take place from June 16 to 19 (U.S.

A Dublin trike lover is spearheading a massive bike and trike run to rally funds for Debra, the charity aiding those affected ...