Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Epidermolysis bullosa is a rare and severe skin disease where patients have fragile skin that blisters and tears. A Mt.

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

Carol Schober-Flores, BSN, RN, is a Mohs Surgical Nurse and Epidermolysis Bullosa Nurse Specialist, University Hospital, Denver, CO. Topical ointments can be applied directly over the Mepitel ...

Ashley Bergen says the healthcare system "helps in some ways" but there have been unexpected barriers to accessing care.

Dermaliq Therapeutics and global non-profit organisation DEBRA Research have entered into a partnership aimed at advancing ...

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

A Dublin trike lover is spearheading a massive bike and trike run to rally funds for Debra, the charity aiding those affected ...