How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

Krystal's Vyjuvek innovative gene therapy leads DEB treatment, overshadowing Abeona's Zevaskyn. Check out the comparison ...

INmune Bio's XPro1595 targets soluble TNF for Alzheimer's. Phase 2 results could reshape inflammatory disease treatment.

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

Musician Eddie Vedder attends the 'Matter Of Time' premiere during the 2025 Tribeca Festival, at Spring Studios, New York, NY, June 12, 2025. The documentary centers around Eddie Vedder's fundraising ...

Zineb Laalej tells PEOPLE exclusively how she cares for daughter Tayma, 9, who has recessive dystrophic Epidermolysis Bullosa It's the most severe form of the rare skin disorder, which is often ...

BIO International Convention (BIO2025), the world’s largest annual biotech event, will take place from June 16 to 19 (U.S.

MACE stores across Cork will play their part in a nationwide campaign to raise awareness of epidermolysis bullosa (EB).

The Pearl Jam frontman played a solo acoustic set following the premiere of a documentary about how he and his wife have ...